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Showing posts with label autism. Show all posts
Showing posts with label autism. Show all posts

Tuesday, 2 May 2017

Odd Girl Out: An Autistic Woman in a Neurotypical World by Laura James #bookreview




About Odd Girl Out

What do you do when you wake up in your mid-forties and realize you've been living a lie your whole life? Do you tell? Or do you keep it to yourself?
 
Laura James found out that she was autistic as an adult, after she had forged a career for herself, married twice and raised four children. Odd Girl Out tracks the year of Laura's life after she receives a definitive diagnosis from her doctor, as she learns that 'different' doesn't need to mean 'less' and how there is a place for all of us, and it's never too late to find it.
 
Laura draws on her professional and personal experiences and reflects on her life in the light of her diagnosis, which for her explains some of her differences; why, as a child, she felt happier spinning in circles than standing still and why she has always found it difficult to work in places with a lot of ambient noise.
 
Although this is a personal story, the book has a wider focus too, exploring reasons for the lower rate of diagnosed autism in women and a wide range of topics including eating disorders and autism, marriage and motherhood.
 
This memoir gives a timely account from a woman negotiating the autistic spectrum, from a poignant and personal perspective
 
 
 
 
My review of Odd Girl Out
 
Odd Girl Out: An Autistic Woman in a Neurotypical World is a raw and startlingly honest account of what it is like to be on the autistic spectrum. Laura James always felt that she was different, bit it wasn't until her mid forties that she finally got her  diagnosis of Autistic Spectrum Disorder, (ASD). Odd Girl Out chronicles Laura's memoirs from when she was first diagnosed with Asperger's syndrome in August 2015, through to December 2016. This book was incredibly insightful and informative, and once I started to read I couldn't stop.  It made me nod in agreement, it made me cry. This is also an uncomfortable read at times, but an important one. I feel that everyone who is affected by autism, individuals themselves, parents and professionals, should all read this book.
 
I wanted to read this book as my youngest son has ASD, he was diagnosed at the age of three in 2011. I like to read books on the subject of autism so that I can better help and enable him to live as independent life as possible. Knowledge as they say is power. I have read many parenting books and autism books by professionals, such as Tony Attwood, Simon Baron-Cohen, Steve Silberman (NeuroTribes was such an interesting read) and Temple Grandin. I do find that books written by individuals on the autistic spectrum,  are by far the most helpful to me. They explain candidly about what it is like to be autistic. Odd Girl Out is one of those books. But never before have I read a book that is so raw, that has been stripped to the absolute bones so that all emotions are exposed, and all with the intention of helping indivials who are on the spectrum, and in particular, women. I felt that I was hugely privileged to be allowed into Laura's world, to read her innermost thoughts and to share her experience in the world as an autistic woman. In doing so I felt like I learned so much more about my son's condition and that now, some of his behaviours make more sense to me. I feel that it is very hard for a neurotypical person to fully understand what autism is, in fact scrub that, I will never understand what it is like to be autistic, but by reading such book's as this, I now have more underrating.
 
This book is also such a breath of fresh air. I am sick to the back teeth of reading about 'cures' and how we need to find a 'cure' for autism. I agree wholeheartedly with Laura when she says that we need to put more resources in place, to have early intervention and help available to parents, rather than ploughing money into researching a cure. Autism is simply different, not less, once again I agree with Laura when she says that autistic brains are wired differently. Just as I find it difficult sometimes to understand my son, he too in turn, most probably finds it difficult to understand me.
 
Books such as Odd Girl Out are vital. We need voices from the autistic community. This is a fascinating read that features Laura's opinions as well as voices from leading autism professionals such as Tony Attwood, Sara Wild (head teacher at Limpsfield Grange, a school for girls on the autistic spectrum) and Dr Judith Gould, a Consultant Clinical Psychologist. and the Lead Consultant at the Lorna Wing Centre for Autism. All of these factors make for an incredibly informative book, but one that I also read as a story. By the time I had finished the book, I felt terribly sad. I  wanted to carry on reading, to learn more about Laura's life. It felt like she had become a close friend, I knew her that well.
 
I would like to thank Laura for writing such a powerful and emotive book. It brought a lump to my throat while reading it because of her sheer honesty. She definitely pulls no punches and I liked this. Laura James will help so many autistic individuals and their families by sharing her personal story, and in particular she will help so many women, who for too long have been misunderstood and misdiagnosed.

This book really is a must read... for everyone.  

 
Odd Girl Out is published by Bluebird Books for Life on 6 April. You can find a copy on Amazon here.

With thanks to Bluebird Books for Life who sent me a hardback copy for review purposes.

To find out more information about autism, please visit the National Autistic Society (NAS) website at http://www.autism.org.uk/

About the author

Laura James is an author and journalist and the owner of a communications agency. Her writing has appeared in many national and international newspapers and magazines.when not frantically fighting deadlines, she can generally be found hiding under a duvet with a stack of good books and lots of chocolate. She is the mother of four adult children and lives with her husband their dogs and cat in North Norfolk. Since her diagnosis she has campaigned for autism awareness and acceptance.






Tuesday, 13 December 2016

Uniquely Human: A Different Way of Seeing Autism by Dr. Barry M. Prizant





About Uniquely Human: A Different Way of Seeing Autism

Essential reading for any parent, teacher, therapist, or caregiver of a person with autism: a groundbreaking book on autism, by one of the world's leading experts, who portrays autism not as a tragic disability, but as a unique way of being human. Autism is usually portrayed as a checklist of deficits, including difficulties interacting socially, problems in communicating, sensory challenges, and repetitive behavior patterns. This perspective leads to therapies focused on ridding individuals of "autistic" symptoms. Now Dr. Barry M. Prizant, an internationally renowned autism expert, offers a new and compelling paradigm: the most successful approaches to autism don't aim at fixing a person by eliminating symptoms, but rather seeking to understand the individual's experience and what underlies the behavior. In "Uniquely Human," Dr. Prizant suggests a major shift in understanding autism: Instead of classifying "autistic" behaviors as signs of pathology, he sees them as part of a range of strategies to cope with a world that feels chaotic and overwhelming. Rather than curb these behaviors, it's better to enhance abilities, build on strengths, and offer supports that will naturally lead to more desirable behavior and a better quality of life. In fact, argues Dr. Prizant, attempts to eliminate "autistic" behaviors may actually interfere with important developmental processes. While it never discounts the difficulties of living with autism, "Uniquely Human" offers inspiring stories, and practical advice drawn from Dr. Prizant's four-decade career working in universities, schools, hospitals, and in private practice. It conveys a deep respect for people with autism and the qualities that make them special. Filled with humanity and wisdom, "Uniquely Human" offers a compassionate and insightful perspective that parents, professionals, and family members will find uplifting and hopeful.

My Review of Uniquely Human: A Different Way of Seeing Autism
 
 


I have read a lot of books on the subject of autism, some good... some not so good. My youngest son, who is eight-years-old, has Autistic Spectrum Disorder (ASD) and I like to read a mixture of both parenting and professional books on the subject matter. This is not to seek a cure, or to change my son, but to help me gain insight into his world. Uniquely Human: A Different Way of Seeing Autism is a book based upon the experiences and professional knowledge of Dr. Barry M. Prizant, an internationally renowned expert on autism, who has worked in the field for over 40 years.

This book is refreshing, uplifting, empathetic and, I loved it.

At last, I have found a book that has a humanistic approach to autism. Just as Steve Silberman's book Neurotribes was hugely informative and focused upon the strengths of autistic people, rather than trying to find a cure, this book is equally as powerful and uplifting. I will just make it clear though, that the author does not shy away from the daily challenges that parents face in raising a child with autism. But the focus is very much upon that of empowering the child by understanding their behaviours, not by seeking a cure. This book contains many examples of case studies from Dr. Prizant's career. Some are funny, some are heart-breaking, and while reading them I found myself thinking: my son acts that way; maybe that is why he acts in that manner. There were so many lightbulb moments in this book, that it made me question how I do certain things and that perhaps I should try to do them differently. That's the thing with raising an autistic child. You are forever learning, trying new strategies, gaining new ideas... and this book has many ideas and insights that are extremely helpful.
 
This book helps to explain how behaviours are seen as a way of reacting to the world, they are a way of coping, that can be seen as antisocial and unacceptable, especially when the child is in full meltdown. Oh, I have had those strafes that scream; I am an unfit mother raising a naughty child. In fact, I have been told this by an unsympathetic stranger when my son was much younger while having a full-blown meltdown on the bus. The message within this book,  is that we have to try and understand why the child is acting in this way, and that by understanding, we can help them. What are the reasons behind their behaviour?  I have read so many books that strive to find a cure for autism and I want to cry. It is a neurodevelopmental disorder, there is no cure, and I don't want to find a cure. I just want to better help my child, What I need as a parent is help, to enable my child to cope with daily stressors, sensory issues and ideas or strategies that can help him.
 
What Dr. Prizant does, is  to succinctly highlight the daily issues that families face, while offering helpful, practical advice and insight into behaviour. I particularly liked that he introduced the importance and the impact of sensory difficulties. Very often this topic is not discussed, although this greatly impacts upon the individual and how they cope with the world around them. My son has Sensory Modulation Dysfunction, and thankfully has strategies at both home and school, along with a sensory diet, that can help him. Many families do not have this support, nor understand that sensory issues exist, so this part of the book I found both insightful and vital for parents, professionals and caregivers.

We are in a good place at the moment. My son attends a specualsit school for children with autism. He was diagnosed early at the age of 3.5 years, and I had a lot of support during those early preschool years. As a family, we were extremely fortunate, therefore I approached this book from a very different viewpoint, than say that of a family who are receiving no support and who are struggling for a diagnosis. Therefore, I can only give my opinion based upon my own circumstances. But I do feel that this book is hugely powerful, in giving parents information and a voice to speak up. That it is ok to voice your concerns and to ask for help.
 
Everyone should read this book to gain a better understanding of autism. It is easy to read, insightful and gives power to the child and the family unit. It is a wonderful book.
 
With thanks to Souvenir Press who provided a hardback copy of the book.

 
Uniquely Human: A Different Way of Seeing Autism  is published by Souvenir Press and can be found on Amazon here.

Sunday, 6 November 2016

Venture by Kate Rauner




An international crew ferries their commercial space station to an enigmatic anomaly in Mars' orbit. Here our solar system touches the Helios star system, a portal that was discovered decades ago and may be lost. Harry joined the mission to escape loneliness on Earth and to indulge his obsession for gardening in space. He finds relationships grow like gardens, though not always as expected. Along their journey, they mine a dangerous comet and visit the small colony on Mars. Tensions flare among the crew, threatening their mission. Things don’t go as planned and the crew must act to save their mission and their lives. A story combining adventure with life aboard a space station .

My Review of Venture

Venture is the sequel to the first book by Kate Rauner, Glitch, that we are given a snippet of in the book's prologue. I have not read Glitch, but for me, Venture worked very well as a stand alone novel. Hand on heart, I read very little science fiction, so I was a little nervous about reading Venture, not knowing if I would enjoy the story, or indeed understand it. But I did. I think that this was down to the author fully explaining the intricacies of Space travel and the mechanics of working is Space, of which I have absolutely no knowledge. What the author managed to do was to make the storyline very easy to follow, in that I knew why certain procedures needed to be done and what the 'living in Space' experience was like as a human far, far away from home.

Although this is a science fiction novel, for me the novel was based very firmly upon human relationships and emotions. One character in particular, Harry, really fascinated me and I found that I eagerly followed his story. He had been sent on the mission as the Life Support Specialist, meaning that his job was to attend to the gardens onboard, in order to maintain the crew's air and water supplies. So a vital job. We learn that back at home, Harry was a keen gardener, and that one of his reasons for taking part in the mission was to gain friends and to escape his lonely life back on Earth. I loved this character, who for me was plainly on the autistic spectrum. As a mother of a young son with autism, I could clearly read between he lines about tins highly intelligent and perceptive young man, who simply had problems reading faces and communicating with others. I followed him closely, waning the absolute best for him.
 
I cannot review the actual storyline without giving the plot away, but all I will say is that this book is fast paced with many twists and unexpected happenings. It is also an incredibly easy read because of the simplistic terminology that is used. As a reader, you fully understand the scientific processes and orders that are given, but are not overwhelmed with scientific jargon. This fine balancing act has been mastered beautifully.
 
For me, the real heart of this science fiction novel, is that of working as a team. We learn the importance of friendships, the boundaries of our understanding and ultimately the lesson of humility. Venture is a fantastic read, even if you are not a science fiction fan.

Venture can be bought from Amazon UK  here and Amazon US here



About Kate Rauner
 
 

Kate writes science fiction novels and science-inspired poetry, and serves as a volunteer firefighter. She's also a retired engineer and Cold War Warrior (honestly, that's what Congress called workers in the nuclear weapons complex of that era.) Now living on the edge of the southwest's Gila National Forest with my husband, cats, llamas, and dog, Kate says she is well on her way to achieving her life-goal of becoming an eccentric old woman.


Monday, 19 September 2016

Owl Song At Dawn by Emma Claire Sweeney




 Book description taken from Amazon 


Maeve Maloney is a force to be reckoned with. Despite nearing eighty, she keeps Sea View Lodge just as her parents did during Morecambe's 1950s heyday. But now only her employees and regular guests recognise the tenderness and heartbreak hidden beneath her spikiness.

Until, that is, Vincent shows up. Vincent is the last person Maeve wants to see. He is the only man alive to have known her twin sister, Edie. The nightingale to Maeve's crow, the dawn to Maeve's dusk, Edie would have set her sights on the stage all things being equal. But, from birth, things never were.

If only Maeve could confront the secret past she shares with Vincent, she might finally see what it means to love and be loved a lesson that her exuberant yet inexplicable twin may have been trying to teach her all along.



My review of Owl Song At Dawn

*My Book of the Year...*


As I started to type this review, a huge lump formed in my throat as I thought about all of the emotions that this book conjured up within me. It moved me on so many levels. So I will try my best to explain what this book means to me, and why I feel that everyone should read it.

Owl Song At Dawn is set in Morecambe, which is only down the road from where I live. As a northern novel there are many iconic landmarks and references that I could easily associate with, such as The Midland Hotel where I only recently had afternoon tea, Brucciani's that do wonderful coffees and ice creams, the Eric Morecambe statue and Marine Promenade. All of these made me feel as if I were visiting an old friend. It welcomed me in from the very first page... and I was hooked. 

The book centres around the main character of Maeve, who is now nearly in her eighties. The story is from Maeve 's point of view and we are told a story from her past that encroaches on her life today. The present day story takes place in Sea View Lodge, which is where Maeve runs a guest house, mainly catering for individuals with a disability and their carers. Along the way we are introduced to many colourful characters, but my heart was very much drawn to Len, who is employed as a gardener and who just happens to have Down's syndrome. 

Maeve is a force to be reckoned with. Throughout the book we learn that she is a strong woman who is intelligent, witty, speaks her mind, but who ultimately is a caring and loving woman. I love her.

It is through Maeve's flashbacks of her time living at Sea View Lodge, as a child and then young woman, that we are told about her life with her twin sister, Edie, who has a learning disability, severe physical disability and autism. We read letters from medical professionals and beautiful lyrical poems that encompass the true essence of her sister. It is the medical reports and correspondence though that very much upset me. The language that was used in the 50's to describe a young child, and then young woman, with a disability are quite frankly disturbing, disrespectful and show that they had very little understanding of how such terminology affected both the individual and carer.

Words and phrases such as suffering, sub normal and burden are commonplace. These individuals were seen as being less, as being different. The author though completely redresses the balance, in her depiction of Edie, who is a bright, loving and happy individual. It makes you as a reader question your own happiness and what is truly important in life. Indeed, what does make us happy? 

The scenes where a young Maeve and Edie are together, are what really touched me. The strong bond clearly evident between them on the page. Maeve did not see all of her sister's so called imperfections, which is what the professionals and system focussed upon, but rather Maeve saw her perfect sister, who loved to laugh, dance, sing and had beautiful curly hair. 

This book touched me deeply. I have never read a book quite like it. I was initially drawn to it because of the subject matter. The author herself has a sister with cerebral palsy and autism, and used this as inspiration for the story and for the colourful and enigmatic character of Edie. I myself have a young autistic son, and worked for many years as a nurse, and I was curious to see how the author would portray disability through her writing, as so many get it wrong. But this book tackles the subject with the upmost respect, dignity, empathy and oodles of humour. In particular the issues surrounding individuals with a learning disability and sexuality, is poignantly told, again with openness and humour. This is something that is often brushed under the carpet, a taboo, we shouldn't talk about it, but this author does, and it is so very refreshing. 

What I feel readers will gain by reading this book is that every life matters. That to have a disability does  not make you less. That those who care for an individual with a disability do not see someone who is broken or needs fixing, they just see someone who they love. This book is a raw, funny and honest read.

Most importantly, I now feel less alone. 


About Emma Claire Sweeney (taken from Amazon)

Emma Claire Sweeney is a multi-award-winning author of fiction, non-fiction and poetry, who currently teaches on City University’s Novel Studio and at New York University in London.

Emma was brought up in the North West of England, the elder sibling of twins, and OWL SONG AT DAWN is inspired by her autistic sister.

With her writer friend and colleague, Emily Midorikawa, she runs the website Something Rhymed, which shines a light on the forgotten friendships of the world’s most famous female authors.

Emma writes literary features, reviews, and pieces on disability for broadsheets and magazines.

Owl Song At Dawn was published by Legend Press on July 1st 2016. It is available to buy from Amazon here.